24/4/17 – Day 132
Not a great deal to report in terms of an update. Oxygen still between 0.08 and occasional air. He’s started having the odd desat/brady again, possibly just reflux related so his ranitidine has been adjusted for his weight. Feeds have gone to 4 hourly today so we’ll see how he goes with that. Stoma loss doesn’t seem to have increased so far…
It’s so lovely to have him just down the road now. Today I actually got to do BOTH school runs with my big boys! We went up to the hospital after morning drop off and spent the day there then came home for afternoon pick up then back up to the hospital for a few hours this evening. Its funny how nice it is to just do normal everyday things, I’m sure the novelty will wear off soon! 😂 It’s been hard leaving him every night, especially since I’d been petty much living at the hospital before so was with him constantly, but it is soooo good to sleep in my own bed again!
Arlo was being insanely cute before we left tonight (look at that little face 😍) which made leaving even harder than usual! He’s really starting to show his own little personality now and he loves his food! Only time he ever really makes a fuss is when he’s ready for his dinner, then we all know about it. All that time nil by mouth though, he’s obviously just making up for lost time! 😁
Look at those prongs! Just before I took this photo I’d taken off his tapes that hold his prongs in place and put new ones on all by myself. I’m strangely proud of them 😂