21/12/16 – Day 8
Day 8 was not a good day. We’d been told constantly to expect good days and bad days and I’d say is our first proper Bad Day. The desats have been one after another, his sats seemed to drop lower with every one and he’s taking longer to recover from them too. He eventually had his echocardiogram today and it showed he has a patent ductus arteriosus or pda for short.
The Doctors didn’t seem hugely concerned. They said it was very common in preterm babies, particularly micro prems, and it explained the desats and increasing oxygen requirement. They’re going to start Arlo on a 3 day course of ibuprofen to try and close the duct which all sounds simple and straightforward enough however they then told us that ibuprofen carrys the risk of side effects. Some of them quite serious including brain bleeds, necrotizing enterocolitis (nec) and kidney problems. If I’m honest I feel uneasy about the ibuprofen. I don’t think it’s going to work and I have a horrible sinking feeling about the potential side effects. I guess all we can do is wait and see though. He’ll have a repeat echocardiogram on Monday.
We did have one brilliant moment today though. He’s opened one of his eyes! Only a little bit but it was amazing. He was already Captain Arlo the superhero and he’s now also Captain Arlo the pirate!